As a parents of a child, whether with 'special needs' or not, it is good to have a support system. Living so far from family, my system is at times smaller than I would like. But.i think that is where the internet comes into play.
Before I go on, you should know, I do have some friends that understand Ruth, and I just have to say, it is wonderful, just wonderful. My friend, Meg, for instance, will always find a way to help me to relax and see Ruth's unique talent for being open to saying what is on her mind. Meg is the one that bought a the cat rock the other day. She has a son that has dealt with anxiety as well, and Meg just always seems to be able to go with the flow. I know she has moments, and that is what helps. I met Meg when I was working in the worst job I have ever had. Each day, I think she came in just to help me to get through the day with one smiling face. It was horrible. Meg pointed me in the direction of my current work locale, and I can not thank her enough.
In any case, I think I had a point.
Oh, yah, support systems.
I have been reading some blogs for almost as long as I have known about blogging. These ladies just have no idea how much their lives have touched mine. For instance, Michelle offered to buy one of Ruth's Rocks. We prayed for her daughter Riley as they were raising funds for a service dog. I wish it could have been more, but I know that it was what we could do, so we did. Then, Michelle wrote about a new place for parents to gather. It is called Hopeful Parents, and you know it has been great to visit there. If you happen onto my blog, please, go check it out. You will not be sorry to have them as a part of your support system. The things that are talked about range from food issues to Autism to Sleep apnea, and the list goes on.
Little things to those on the outside, your know "behavior issues" ... the parents know just how hard it is to seperate an 8 year old's attitude from her sensory issies or anxiety. Find a support, whether from your mother who reads as many books as you do {Thank you, Mom} to the local pal who helps you laugh to the person you may never meet in person that helps with achieving a goal in whatever manner they can, you will not regret it.
Finding Her Way
Ruth loved camp. It was the best time, and I am so thankful. I found it was truly good for me as well. RESPITE is the word I heard as I described the way I felt. It was three days of not worrying about what was going to happen next. I sat and read books, enjoyed some down time. What a blessing. :)
Now, today, we went to the library for the rock painting activity. She needed me to stay close by. I should have realized that would be the way when she came out of her room dressed in her yoga pants with a flannel shirt covering a tank top. This outfit does not match, but it is her favorite. I have a feeling it is a comfort measure, as the temperature was 90 degrees. She insisted, and I let her wear it. I knew that it was not worth fighting over. Good choice. We got the library, where Ruth grabbed my hand. Last time, she ran downstairs without a second glance. I sat nearby as she painted her rocks. Everyone was shown how to make a lady bug. Ruth made two.
Then, she made a cat and one with a heart. They were adorable. Imagine my surprise when she asked me if I thought she could sell them. 50 cents for the small ones, and a dollar for the larger ones. I said I thought so, and she tried it out on my pal, Meg. When asked what she is going to do with the funds, Ruth eagerly replied "I am going to put it toward my Camp Wightman fund."
See, when we let go, sometimes our kids can find their own way...
Now, today, we went to the library for the rock painting activity. She needed me to stay close by. I should have realized that would be the way when she came out of her room dressed in her yoga pants with a flannel shirt covering a tank top. This outfit does not match, but it is her favorite. I have a feeling it is a comfort measure, as the temperature was 90 degrees. She insisted, and I let her wear it. I knew that it was not worth fighting over. Good choice. We got the library, where Ruth grabbed my hand. Last time, she ran downstairs without a second glance. I sat nearby as she painted her rocks. Everyone was shown how to make a lady bug. Ruth made two.
Then, she made a cat and one with a heart. They were adorable. Imagine my surprise when she asked me if I thought she could sell them. 50 cents for the small ones, and a dollar for the larger ones. I said I thought so, and she tried it out on my pal, Meg. When asked what she is going to do with the funds, Ruth eagerly replied "I am going to put it toward my Camp Wightman fund."
See, when we let go, sometimes our kids can find their own way...
Going Out into the World
One thing that can be said of our Sensory Seeking Kids: they want to experience everything. Touching helps them to understand things they have not experienced, or experienced to its fullest. Investigating and moving can make many of us tired after only a few minutes, but it is not enough for them. At home, it is workable. We automatically convert our living space to meet the needs of our families. But out in the world…. It can be a task and a half to meet their needs.
Ruth is at her first "sleeping over camp". There is a Baptist camp that is less than 10 miles from our home. It helps to know that if there is a need, we can be there in no time. :) That said, I must say that the one thing about leaving her somewhere is in trying to explain her behaviors and how to best suit the need, either for out put or for retreat. The same situation can present different outcomes.
My mother suggested I write a letter to explain how to best handle her needs. I thought about it, but it caused me great anxiety. How can I possibly explain what to try in all circumstances? I can hope that I have prepared her to follow the rules, and to navigate her needs within the boundaries. I can only ask that the leaders be sensitive and understand that she is not always trying to misbehave, though sometimes she does. :)
My comfort level was met when I registered her, though the counselor did not know anything about SPD or anxiety. He seemed to be open to understanding, and well, it helped that there is a woman in one of the other sessions that jumped in to offer her aid. (She is a paraprofessional and knew what to ask.)
It is hard to let my girl go out into the world. It may be that she is out there on her own, and is just 8 years old. Or it may be that she has to get through a new experience on her own. But, I have to admit, I have a feeling of comfort in letting her go. I feel the foundation is laid, and she has to begin to build her own life...
Ruth is at her first "sleeping over camp". There is a Baptist camp that is less than 10 miles from our home. It helps to know that if there is a need, we can be there in no time. :) That said, I must say that the one thing about leaving her somewhere is in trying to explain her behaviors and how to best suit the need, either for out put or for retreat. The same situation can present different outcomes.
My mother suggested I write a letter to explain how to best handle her needs. I thought about it, but it caused me great anxiety. How can I possibly explain what to try in all circumstances? I can hope that I have prepared her to follow the rules, and to navigate her needs within the boundaries. I can only ask that the leaders be sensitive and understand that she is not always trying to misbehave, though sometimes she does. :)
My comfort level was met when I registered her, though the counselor did not know anything about SPD or anxiety. He seemed to be open to understanding, and well, it helped that there is a woman in one of the other sessions that jumped in to offer her aid. (She is a paraprofessional and knew what to ask.)
It is hard to let my girl go out into the world. It may be that she is out there on her own, and is just 8 years old. Or it may be that she has to get through a new experience on her own. But, I have to admit, I have a feeling of comfort in letting her go. I feel the foundation is laid, and she has to begin to build her own life...
This is the summer of:
- Learning to ride a bike
- Cleaning out a bedroom to be comfortable and have a place to play
- Fishing-- putting worms on hooks, and pulling fish off of them
- Being able to cook simple foods
- Swimming both above and below the surface of water
- Going to overnight camp for the first time
- Camping in the yard with friends
- Remembering to handle small animals with care
- Playing ball with the dog
- Wearing a plastic shopping bag as underwear to meet the "keep your bottom covered" rule
- Discovering that spaghetti strap bras are good under tank tops
- Reading 10 chapter books before vacation is half over
There are so many things that are important to our sensory kids. Being able to be in an environment that is comfortable is high on the list. When our kids are feeling safe and comfortable, they seem to be able to be more focused, and better to interpret the world around them. The willingness to try new things with out melting down is stronger. It makes one wonder how to give them this feeling all year long...
Learning Hands On
In my house we have raised boys. I have helped to capture snakes, watched a snail lay eggs, caught tadpoles, and the list goes on. I guess I figured that if they were interested, then I should help them learn. Was it my greatest desire to create a home for the ring snake that ended up dying because it stuck to the duct tape that I placed on the top of the terrarium after it had gotten out in the house and hid under the dishwasher? No, not really. But, I just find this to be one way that children can learn about how things work.
So, I shouldn't be surprised that Ruth thinks nothing of carrying in critters like a grey tree frog.
Of course, I was not really surprised when she decided to place it on my shirt, either. She found it while out on a walk with her beloved Grandpa. He finds her to be amazing. As he pointed out today, "When we are on a walk in the woods, there isn't a rock or a log that she can overturn that is passed by untouched." On my walks with Ruth, we seek out gypsy moth caterpillars, earthworms, beetles, slinky or scaly animals, rabbits, and owl pellets. (Yes, folks, that would mean dried owl puke.)
Ruth's newest enjoyment is fishing. I asked her last night, while she and I were out fishing on a mother daughter date (I cannot believe this...) what her summer goal was. "I want to fish as much as possible." was her honest response just prior to my catching a small bluegill. It was the only catch on the evening. I don't have any tools for removing hooks from the fish's mouth, and Ruth somehow, without a knife or scissors, cut the line. As we drove home, Ruth talked about taking the fish to Grandpa's to have him help us. I explained that Daddy was able to help, and she pouted a bit. When I asked why she said, "Grandpa would let dissect it."
I must admit. It was too small to eat, and there was no way it would have lived. I told her that I would let her dissect it. I mean, it was a way to let her explore, hands on, while not ruining a food source. She ran into the house and grabbed a steak knife. By the time I reached the utility table, she was sawing away. "I need some help, this is too hard for me to do,"she pleaded. I went in and got the fillet knife, and she tried again. "wow, that made it easy." I will not go into the gory details, but let's just say I will not look at a bubble the same way again. She explored until we found a red worm crawling around.
I find that we can teach our kids about things. I mean I figure I could either be the 'coolest mom' or the worst. I am not a frilly girl. I know how to wear a dress, and make up, but it is not my every day lifestyle. I had forgotten along the way the days I spent creating fishing poles from string, a stick and a safety pin. I recalled today the days spent with the boys next door tracking water bugs and earthworms. Or late afternoons fishing alongside my Dad, minus my 5 siblings which was a rare treat. I guess that I hadn't considered the prospect of having a nature girl in my life. But I can say one thing...
I am thankful to be able to share with her some hands on learning.
So, I shouldn't be surprised that Ruth thinks nothing of carrying in critters like a grey tree frog.
Of course, I was not really surprised when she decided to place it on my shirt, either. She found it while out on a walk with her beloved Grandpa. He finds her to be amazing. As he pointed out today, "When we are on a walk in the woods, there isn't a rock or a log that she can overturn that is passed by untouched." On my walks with Ruth, we seek out gypsy moth caterpillars, earthworms, beetles, slinky or scaly animals, rabbits, and owl pellets. (Yes, folks, that would mean dried owl puke.)
Ruth's newest enjoyment is fishing. I asked her last night, while she and I were out fishing on a mother daughter date (I cannot believe this...) what her summer goal was. "I want to fish as much as possible." was her honest response just prior to my catching a small bluegill. It was the only catch on the evening. I don't have any tools for removing hooks from the fish's mouth, and Ruth somehow, without a knife or scissors, cut the line. As we drove home, Ruth talked about taking the fish to Grandpa's to have him help us. I explained that Daddy was able to help, and she pouted a bit. When I asked why she said, "Grandpa would let dissect it."
I must admit. It was too small to eat, and there was no way it would have lived. I told her that I would let her dissect it. I mean, it was a way to let her explore, hands on, while not ruining a food source. She ran into the house and grabbed a steak knife. By the time I reached the utility table, she was sawing away. "I need some help, this is too hard for me to do,"she pleaded. I went in and got the fillet knife, and she tried again. "wow, that made it easy." I will not go into the gory details, but let's just say I will not look at a bubble the same way again. She explored until we found a red worm crawling around.
I find that we can teach our kids about things. I mean I figure I could either be the 'coolest mom' or the worst. I am not a frilly girl. I know how to wear a dress, and make up, but it is not my every day lifestyle. I had forgotten along the way the days I spent creating fishing poles from string, a stick and a safety pin. I recalled today the days spent with the boys next door tracking water bugs and earthworms. Or late afternoons fishing alongside my Dad, minus my 5 siblings which was a rare treat. I guess that I hadn't considered the prospect of having a nature girl in my life. But I can say one thing...
I am thankful to be able to share with her some hands on learning.
Worth its weight
I must say Ruth's new blanket is getting a work out. She snuggles under it at night to go to sleep. It is dragged around to relax with on the couch. And, when she becomes distraught, it has helped in her regaining control.
When Ruth gets anxious, she begins to escalate. Her crying becomes almost crazed, and it is hard to get her to calm down. Once she begins to spiral out of control, it can take all afternoon to get through the issue. Twice this week, we went there. It is overwhelming for her, and for those around her. Often it is a combination of anxiety and over stimulation. Both times, I reached to hold her in my arms, and while she excepted that, it did not calm her. Then, I remembered the blue gift from heaven. (Well, from Aunt Beth and Uncle Jim, but still...) We got the blanket and wrapped her up. She covered her head all the way to her toes. Within minutes, we had a crying, but not uncontrolled child. With a half hour, there was laughter, and we could move on to new things. I can not say just how much this is worth to us...
A gift...
With a child with severe sensory needs, you will find there is a multitude of information that says they need to "work it out". Often this means "heavy work", or applying pressure in the form of massage or blankets/ vests/ lap pads.
Today, Ruth received a gift. One that has been longed for. Her god parents purchased for her a weighted blanket. It is a glorious fabric-- 'soft and silky'. The look on Ruth's face as she wrapped up in her "giant hugging me" blanket, well, it was priceless.
I look forward to seeing how this works in the long run. I believe it will have a great impact on her anxiety and on her well being.
All I can say is "Thank you" for the gift. It means more than words can say...
Today, Ruth received a gift. One that has been longed for. Her god parents purchased for her a weighted blanket. It is a glorious fabric-- 'soft and silky'. The look on Ruth's face as she wrapped up in her "giant hugging me" blanket, well, it was priceless.
I look forward to seeing how this works in the long run. I believe it will have a great impact on her anxiety and on her well being.
All I can say is "Thank you" for the gift. It means more than words can say...
Priority
I was luck enough to go to a Sensory Processing Workshop a couple of weeks ago. I have many things to share, but I do not have time right this minute.
One thing I want to share is about how to prioritize the needs of our sensory kids.
In our home, we deal with many sensory issues. Ruth is the only diagnosed person, but we all, even you, have sensory needs. You pick up the smell of something, the way your clothes fit today, what you have had to eat, these affect your ability to work effectively. So, how do we create priority in a home when one person is seeking extra input (more smell, more noise, more taste) while another is needing to withdraw from it?
You know what I mean. Think about the car. You are driving and do not know where you are. Do you turn down the music? This is a decrease to your senses. Are you with me?
Okay. I think it is fair to say that in our home, it can be crazy. It is rather small, and there is a large doorway from the living room to the kitchen. The TV is almost always on. Often, there is at least one person melting down because of an overload. You need it quiet to talk on the phone, or to do homework.
There are times when this becomes a battle field. UGH!
The solution: The person who is in need of less stimulation gets priority. It is not really simple, but it is a good guideline. I put it to work last night. Here is how it worked:
On Tuesdays, Ruth has a two page math assignment for homework. It can be confusing, even for grownups. She has to write how she is figuring out a multi step problem. Writing is a struggle as it is. So, last night, she began to break down. (I had left the room to answer nature's call.) The TV was too much for her. Two weeks ago, this would have resulted in a huge fight between she and her older brothers. I would have been screaming. Not fun, and not good for getting school work done. I was able to intercept before the fighting began. I calmly explained that Ruth's needed to be at the table for complete her work. She needed it to be quiet for the next 5- 10 minutes. The boys made their typical comments like "I'll remember this". I explained that I would try to remember when the need is theirs as well, but please try to understand. Ruth finished her work in a matter of minutes. Without tears. :) Then, she said, "I need it to be quiet so I can read." I explained that reading can be done in her room. "Oh, yeah." she replied, and off she went.
Priority goes to the one who is avoiding. The reason? As their needs change, you can add stimuli back. But, if there is too much stimulus, then it is hard to judge where to cut back. So, next time you are in a situation where there is a fight over how loud something is, turn it all the way down. Then, ask the one who is struggling with it if we can add it back, slowly. Sure enough, before you know it, there will be a bit of peace in your life, instead of all out warfare...
One thing I want to share is about how to prioritize the needs of our sensory kids.
In our home, we deal with many sensory issues. Ruth is the only diagnosed person, but we all, even you, have sensory needs. You pick up the smell of something, the way your clothes fit today, what you have had to eat, these affect your ability to work effectively. So, how do we create priority in a home when one person is seeking extra input (more smell, more noise, more taste) while another is needing to withdraw from it?
You know what I mean. Think about the car. You are driving and do not know where you are. Do you turn down the music? This is a decrease to your senses. Are you with me?
Okay. I think it is fair to say that in our home, it can be crazy. It is rather small, and there is a large doorway from the living room to the kitchen. The TV is almost always on. Often, there is at least one person melting down because of an overload. You need it quiet to talk on the phone, or to do homework.
There are times when this becomes a battle field. UGH!
The solution: The person who is in need of less stimulation gets priority. It is not really simple, but it is a good guideline. I put it to work last night. Here is how it worked:
On Tuesdays, Ruth has a two page math assignment for homework. It can be confusing, even for grownups. She has to write how she is figuring out a multi step problem. Writing is a struggle as it is. So, last night, she began to break down. (I had left the room to answer nature's call.) The TV was too much for her. Two weeks ago, this would have resulted in a huge fight between she and her older brothers. I would have been screaming. Not fun, and not good for getting school work done. I was able to intercept before the fighting began. I calmly explained that Ruth's needed to be at the table for complete her work. She needed it to be quiet for the next 5- 10 minutes. The boys made their typical comments like "I'll remember this". I explained that I would try to remember when the need is theirs as well, but please try to understand. Ruth finished her work in a matter of minutes. Without tears. :) Then, she said, "I need it to be quiet so I can read." I explained that reading can be done in her room. "Oh, yeah." she replied, and off she went.
Priority goes to the one who is avoiding. The reason? As their needs change, you can add stimuli back. But, if there is too much stimulus, then it is hard to judge where to cut back. So, next time you are in a situation where there is a fight over how loud something is, turn it all the way down. Then, ask the one who is struggling with it if we can add it back, slowly. Sure enough, before you know it, there will be a bit of peace in your life, instead of all out warfare...
Dealing with cravings
This is one of the hardest parts of our journey.
How do we deal with cravings? For Ruth, the cravings are sweet and salty. These are not good for her, especially since we are a family that struggles with weight. I think that I have a handle on things, and then, I realize that I likely do not.
We have candy in the house. We make waffles and pancakes. Cake is something that we have at least once in a while. At this time, there is soda in the basement.
All I can say is that I try my best.
We offer her fruit, not juice. The soda is left from a special occasion, and actually Ruth asked that we put it away so she would not see it. That is why it is in the basement. Yes, we had waffles with syrup. I could beat myself up, but it was what we had available at the time. Ruth is just as happy with scrambled eggs, especially if she makes them. The candy is an issue, but even that is undergoing some changes. The chocolate is darker each time it is purchased. It is not intended for Ruth, but she can see it, smell it, and I cannot hide it. So, we are working on it being a healthier type.
I mean, I am trying to limit my own cravings for sugar. It is not easy. The next best thing I can do is to say that we need to increase the Sensory Diet to include more exercise activities. If we can stabilize the weight, then we will be doing a good thing.
Socks and Boots
Okay, I know many folks understand this. My kiddo hates socks. Going that far, she comes from a long line of sock haters. I still fuss if they do not feel right. Now, with winter, we have the same issue with boots. How does one get ready to play in the snow? Definitely socks and boots are on the list.
It is hard to be little. I remember. It can be hard to be a mom too. I experience that each day first hand. Today, the struggle was socks and boots. UGH! She just wanted to get out to play in the white stuff. OR maybe to disappear over to Grandpa's. Whatever the reason, socks and boots were needed. They didn't feel right. They hurt. The ridge itched her toes. The boots felt like they were on the wrong feet. The mother said "It is just the way it is. Sometimes we must deal with it." Ah, but, it is not easy. I know. I remember. I will do my best each day to remain calm in the face of her frustration. I will offer her MY socks. Whatever it takes to make things work for the moment.
It is good when things work out. The girl gets outside. She plays in the snow. She visits Grandpa. She relaxes. Things are good in the world. Who knows how it happens? It just does.
Socks and boots. Who could guess they would drive one crazy?
Oh, wait I did...
It is hard to be little. I remember. It can be hard to be a mom too. I experience that each day first hand. Today, the struggle was socks and boots. UGH! She just wanted to get out to play in the white stuff. OR maybe to disappear over to Grandpa's. Whatever the reason, socks and boots were needed. They didn't feel right. They hurt. The ridge itched her toes. The boots felt like they were on the wrong feet. The mother said "It is just the way it is. Sometimes we must deal with it." Ah, but, it is not easy. I know. I remember. I will do my best each day to remain calm in the face of her frustration. I will offer her MY socks. Whatever it takes to make things work for the moment.
It is good when things work out. The girl gets outside. She plays in the snow. She visits Grandpa. She relaxes. Things are good in the world. Who knows how it happens? It just does.
Socks and boots. Who could guess they would drive one crazy?
Oh, wait I did...
Long Dresses and wiggle room
Here is a good reason that long dresses are great for my sensory kid.
SCHOOL CONCERTS
Last spring, when Ruth had her 2nd grade concert. Her anxiety was through the roof. She just could not stand to be up with all those people surrounding her. She was upset about those in the audience as well. I sat near the back and watched, with some dismay. Oh, there was my little girl, cute as a button, holding her knee length dress up over her shoulders. Thank goodness I managed to get tights on her. I had to seek out other children I knew to watch. Ah, so crazy, I know. But, I hadn't learned then the few things I know now.
During the summer Ruth was a flower girl at my niece's wedding. When the discussion of dresses came up, I suggest one to the floor. Ruth's legs were scabby, and it was a great way to hide that. Besides, it seems more princess like, and I thought she would enjoy it. My sister ensured me that a lot of little girls legs were scabby, and we went with it. :) This dress was used during the wedding, and on several Sundays since. Now, it was used for the concert. I must say, I saw her lifting it up, but I didn't see past her knee. :)
The other thing that helps is to blow dry her hair. It had some sort of calming ability. I don't know why, but as my sister pointed out at the wedding, Ruth is a seeker, so maybe it provides the right amount of input for her to work through.
Oh, and wiggle room. Ruth's teacher has come a long way in understanding Ruth. One day not too long ago, Ruth came home and told me she doesn't know how, but the music teacher "forgot" where she belonged and moved her to a new spot. I believe that her classroom teacher suggested a spot on the edge where Ruth was not boxed in. What a good idea. She did spend much of the time wiggling and shaking.
Needless to say, I had the opposite sense of feeling at this concert. Ruth was perky and fun. She loves the music, and danced to her heart's content. She sang and did the motions. (If she was of a little, it just made her more noticeable, and as she was so cute, that was cool.)
Chalk one up on the winning side.
Knowing when to quit, or having an out
One of the things I am working on with Ruth these days is knowing when to quit an event. She can do just about anything, but I am trying to pay more attention to the cues that mean she is becoming over stimulated: the need to move, to hide, to climb. These behaviors can be irritating to say the least, and, as a mom, I want her to just learn to sit and behave. But, I am finding that by watching and learning I can get her "out" while we are still having success. That makes her feel good, and truly, it helps me to stay in control of my own feelings. It is better to do something and leave early than to either avoid going or leave in a fit.
The first time I realized this was at a wedding in August. Ruth has a great time, as did I. But, there were a few behaviors toward the end that, in hind sight, should have been my cue that she was losing her ability to stay in control. We left in tears, and that was too bad.
Then, at her own birthday party, I saw some of the triggers starting, and we attempted to get her out of the situation as quickly as possible. I missed the window, but it did not take as long for her to gain back control. Hmm, a pattern emerged.
Yesterday, we went to a funeral. Ruth had been asked by a dear friend of mine to help set up the reception. When we got into the packed church, Ruth was pretty calm. She began finger sucking and twirling her hair. She sat on my lap and promptly fell asleep. There was no buildup of behaviors, this was instant overload, and she needed escape. So, she slept through the service, and woke up in time to stand in line and speak to the widow and her family. This went quite well, and we slipped into the reception hall as the crowd went to the graveside. There Ruth had success in helping to set up the food. We waited to help out for about 45 minutes. The crowd still had not returned. I noticed a trigger behavior, and decided to take her before the people all arrived. Success was felt! She was thanked for her help and then we walked quietly to the car. She got home and was relaxed.
Sometimes, this stuff is hard to deal with. I mean who wants to plan out a for attending an event? But, by being aware that this is the best thing, we could spend time doing something, and instead of my being afraid of her becoming "naughty" I could instead focus on her good side.
The first time I realized this was at a wedding in August. Ruth has a great time, as did I. But, there were a few behaviors toward the end that, in hind sight, should have been my cue that she was losing her ability to stay in control. We left in tears, and that was too bad.
Then, at her own birthday party, I saw some of the triggers starting, and we attempted to get her out of the situation as quickly as possible. I missed the window, but it did not take as long for her to gain back control. Hmm, a pattern emerged.
Yesterday, we went to a funeral. Ruth had been asked by a dear friend of mine to help set up the reception. When we got into the packed church, Ruth was pretty calm. She began finger sucking and twirling her hair. She sat on my lap and promptly fell asleep. There was no buildup of behaviors, this was instant overload, and she needed escape. So, she slept through the service, and woke up in time to stand in line and speak to the widow and her family. This went quite well, and we slipped into the reception hall as the crowd went to the graveside. There Ruth had success in helping to set up the food. We waited to help out for about 45 minutes. The crowd still had not returned. I noticed a trigger behavior, and decided to take her before the people all arrived. Success was felt! She was thanked for her help and then we walked quietly to the car. She got home and was relaxed.
Sometimes, this stuff is hard to deal with. I mean who wants to plan out a for attending an event? But, by being aware that this is the best thing, we could spend time doing something, and instead of my being afraid of her becoming "naughty" I could instead focus on her good side.
Routines
Routines seem so very, well, routine. To someone with a creative flair, they might seem to inhibit you from doing what you want to create. To others, they are a lifeline.
Working on routines have always been so hard for me, as a person or as a mother. But, I learned a few years ago, from this site, that routines can give you more time and energy to do the things you love.
But, I am human, and I forget how important these routines are. Simple routines, like rubbing Ruth's back, can make all the difference in the world. Take last night for example. I had a long day. We went from work to therapy to Nana's to home (for Ruth) to church for a meeting to home again. I didn't sit for relaxation until after 8 PM. Ruth was tired, so I thought, mistakenly, that she would just relax and go to sleep. Not so. The things we passed out time with did not give her the sensory input she needed. This worked her up, rather than settled her down. After her daddy talked to her, she was still too wound up to settle. Then, I remembered 'routine" and sensory integration work together.
So, I went in. I held her on my lap. She cried and tried to explain away her behavior. I told her that I just wanted to sit and for her to not talk right now. I rocked her for a few minutes, then I could feel her drooping. She laid down, and I covered her with our heaviest blanket. (Man, I need one of those weighted blankets.) I sat for a few more minutes rubbing/patting her back through he blanket. her eyes began to droop. She reached her legs up. Ah, a sign for needing to be brushed. I pulled out the sensory brush, and began to gently pull it along her legs. She requested more pressure. Ah, yes, the need for sensory input was great. With in a minute or so, she was smiling in that tired droopy fashion that reminds me of her as a contented baby after she had finished nursing, minus the milk dripping out of the corner of her mouth.
Routines. We need them in this sensory filled home. They not only get work done, but they allow us to fill the sensory void, to be able to relax and feel in control. In our home, I need to remember that routines are not the enemy, but are a friend.
Working on routines have always been so hard for me, as a person or as a mother. But, I learned a few years ago, from this site, that routines can give you more time and energy to do the things you love.
But, I am human, and I forget how important these routines are. Simple routines, like rubbing Ruth's back, can make all the difference in the world. Take last night for example. I had a long day. We went from work to therapy to Nana's to home (for Ruth) to church for a meeting to home again. I didn't sit for relaxation until after 8 PM. Ruth was tired, so I thought, mistakenly, that she would just relax and go to sleep. Not so. The things we passed out time with did not give her the sensory input she needed. This worked her up, rather than settled her down. After her daddy talked to her, she was still too wound up to settle. Then, I remembered 'routine" and sensory integration work together.
So, I went in. I held her on my lap. She cried and tried to explain away her behavior. I told her that I just wanted to sit and for her to not talk right now. I rocked her for a few minutes, then I could feel her drooping. She laid down, and I covered her with our heaviest blanket. (Man, I need one of those weighted blankets.) I sat for a few more minutes rubbing/patting her back through he blanket. her eyes began to droop. She reached her legs up. Ah, a sign for needing to be brushed. I pulled out the sensory brush, and began to gently pull it along her legs. She requested more pressure. Ah, yes, the need for sensory input was great. With in a minute or so, she was smiling in that tired droopy fashion that reminds me of her as a contented baby after she had finished nursing, minus the milk dripping out of the corner of her mouth.
Routines. We need them in this sensory filled home. They not only get work done, but they allow us to fill the sensory void, to be able to relax and feel in control. In our home, I need to remember that routines are not the enemy, but are a friend.
Head Banging
Scary thought, huh?
Head banging is the newest thing we have had to deal with. In times when things are intense for Ruth, she feels the need to bang her head. Do we let her? Well, not really. I mean, she has, but we seek other things for her to do, like take a shower. I was extremely worried about this behavior, and contacted the Occupational Therapist. She said that it is cause by a need for intense input. Oh. So, for a kid with sensory seeking behavior, this could be normal, I guess.
We are looking at what we are providing her at home, and readjusting. She gets 2 bath/shower times a day (or more), we are brushing her, and there are changes to allow for more movement in our living room.
Someday, we will buy her a weighted blanket or neoprene vest to help add pressure when she feels out of control. The OT said she needs that input to reorganize herself: body, mind, and I bet even soul. I mean really think about what it feels like when you are so frustrated you can not even think.
I believe the saying goes: "I feel like banging my head against a wall.".
Head banging is the newest thing we have had to deal with. In times when things are intense for Ruth, she feels the need to bang her head. Do we let her? Well, not really. I mean, she has, but we seek other things for her to do, like take a shower. I was extremely worried about this behavior, and contacted the Occupational Therapist. She said that it is cause by a need for intense input. Oh. So, for a kid with sensory seeking behavior, this could be normal, I guess.
We are looking at what we are providing her at home, and readjusting. She gets 2 bath/shower times a day (or more), we are brushing her, and there are changes to allow for more movement in our living room.
Someday, we will buy her a weighted blanket or neoprene vest to help add pressure when she feels out of control. The OT said she needs that input to reorganize herself: body, mind, and I bet even soul. I mean really think about what it feels like when you are so frustrated you can not even think.
I believe the saying goes: "I feel like banging my head against a wall.".
New Friend
I love when Ruth makes a new friend. It does two things.
It gives her needed peer support which she craves. Having a friend to share joys and sorrows is so important. Ruth has no sisters, and so I pray she will find that friend that fills the void. Maybe this is the one...
The other is kind of selfish of me...
I had 4 hours to myself. Without the constant wonder and worry of Ruth. I moved furniture around. I worked on a project for a retreat. I sat and watched adult TV (true crime shows are not Ruth material). One thing that is hard to realize as a mother of a child with SPD is that we do need these down times. This is important so that we can refresh and rediscover our joy in our bundles of wonder. When we are tired, okay, when I am tired, I get frustrated and snappy. I forget that if I just plan ahead I can help Ruth to achieve great things. Down time allows me to be me. When I am me, I gain focus. I achieve joy. Or maybe I don't, but I can feel a shift in my attitude about life.
New friends, old friends, friends are a blessing.
It gives her needed peer support which she craves. Having a friend to share joys and sorrows is so important. Ruth has no sisters, and so I pray she will find that friend that fills the void. Maybe this is the one...
The other is kind of selfish of me...
I had 4 hours to myself. Without the constant wonder and worry of Ruth. I moved furniture around. I worked on a project for a retreat. I sat and watched adult TV (true crime shows are not Ruth material). One thing that is hard to realize as a mother of a child with SPD is that we do need these down times. This is important so that we can refresh and rediscover our joy in our bundles of wonder. When we are tired, okay, when I am tired, I get frustrated and snappy. I forget that if I just plan ahead I can help Ruth to achieve great things. Down time allows me to be me. When I am me, I gain focus. I achieve joy. Or maybe I don't, but I can feel a shift in my attitude about life.
New friends, old friends, friends are a blessing.
Changes
Yesterday, there was a note from school. Two, actually.
One was on a packet of written work "Ruth used a lap pad and did a GREAT job getting her work finished." Hmm, a lap pad, you mean you gave her some sensory input and she responded positively? Why am I not surprised? This was wonderful on many levels. It validates what I have been asking for: that Ruth needs to have a correct sensory diet. It also gave Ruth an absolutely fantastic start to her weekend.
The other was 7 words long "Ruth had a very good day today."
In translation: Ruth got to eat her snack, she completed all her work on time. She not only had the lap pad, but wore a weighted vest for parts of her day. She felt good inside and so was able to produce what the teacher asked for. Isn't that wonderful?~!
One was on a packet of written work "Ruth used a lap pad and did a GREAT job getting her work finished." Hmm, a lap pad, you mean you gave her some sensory input and she responded positively? Why am I not surprised? This was wonderful on many levels. It validates what I have been asking for: that Ruth needs to have a correct sensory diet. It also gave Ruth an absolutely fantastic start to her weekend.
The other was 7 words long "Ruth had a very good day today."
In translation: Ruth got to eat her snack, she completed all her work on time. She not only had the lap pad, but wore a weighted vest for parts of her day. She felt good inside and so was able to produce what the teacher asked for. Isn't that wonderful?~!
One day at a time...
I can and will get through this. I can and will get through this.
Ruth is struggling so much. It is only day 5 and tonight she had 7 “extra” pages of writing and math besides the one meant to be homework. They are offering sensory items “as needed”, but yet, she is not able to use them the way she feels.
I am frustrated, and she is crying “I hate me.”. I spoke to the teacher yesterday and felt better, but tonight I just want to scream. I have open house tonight, and can only hope that I will not be so aggravated as to say something that should not be said.
I can and will get through this. I can and will get through this.
Ruth is struggling so much. It is only day 5 and tonight she had 7 “extra” pages of writing and math besides the one meant to be homework. They are offering sensory items “as needed”, but yet, she is not able to use them the way she feels.
I am frustrated, and she is crying “I hate me.”. I spoke to the teacher yesterday and felt better, but tonight I just want to scream. I have open house tonight, and can only hope that I will not be so aggravated as to say something that should not be said.
I can and will get through this. I can and will get through this.
Communicating
It can be so hard to be a mother with a background of fighting with teachers and feeling unvalidated. My struggles with the public school system are noted by those I work with, as well as my family and friends. So, I am quick to assume the worst, instead of hoping for the best. I mean, I try to hope for the best, but I let myself get worked up over the worst. Does that make sense? In any case, I am forever rediscovering that communicating is the best way to handle the school. At least it worked for me, well, for today....
Friday brought about no snack or recess for Ruth. She was lagging behind in her work, and though it did not upset her to be without snack, I felt a rush of frustration. Added to that was the fact that her classroom is without her sensory items: No seat, no fidgets, no heavy work. This of course results in her need to get out energy, resulting in chatter. I feel lucky it was not bouncing, picking, itching, scratching, bleeding, poking, squeaking, squealing, or the need to remove herself from the classroom via the bathroom where she sucks her fingers in private. (Though any of these would have been reason for the teacher to show concern instead of discipline.)
Ah, frustration. I took into account my mother's, and pastor's, words of wisdom, and did something. No, I was not the aggressive she tiger my mother suggested. I took a different road. I assumed there was a reason, and I do not want to alienate the teacher in the first week of school. So, I called and spoke to the teacher.
INSIGHT ABOUNDS!
On Friday, the teacher noticed Ruth was struggling with her math. She took her aside to a quiet table, and sat with her to work out the problems. She offered reminders about getting her work done so that she would not miss out on snack. It sounds pretty supportive and exactly what I would want. :) She gave me the opportunity to explain that Ruth will "whine" as a result of her anxiety. She knew the math, but was afraid to get them wrong. She assumes the worst... sounds familiar? The teacher THANKED me for letting her know.
The teacher also said that she was sorry that Ruth had missed the whole recess. That was not intended. She has already spoken to the teachers on the playground, and we talked about the sensory stuff, and how they might help. She asked about if we should use the balance disk, and I began to explain there was something different to help Ruth. I had not finished explaining about how to use a flex-band (The kind of long exercise band used with stretching) to help, when she piped in "Oh, the type to tie around the bottom of her chair to bounce her legs on?".
This might turn out to be great!
Friday brought about no snack or recess for Ruth. She was lagging behind in her work, and though it did not upset her to be without snack, I felt a rush of frustration. Added to that was the fact that her classroom is without her sensory items: No seat, no fidgets, no heavy work. This of course results in her need to get out energy, resulting in chatter. I feel lucky it was not bouncing, picking, itching, scratching, bleeding, poking, squeaking, squealing, or the need to remove herself from the classroom via the bathroom where she sucks her fingers in private. (Though any of these would have been reason for the teacher to show concern instead of discipline.)
Ah, frustration. I took into account my mother's, and pastor's, words of wisdom, and did something. No, I was not the aggressive she tiger my mother suggested. I took a different road. I assumed there was a reason, and I do not want to alienate the teacher in the first week of school. So, I called and spoke to the teacher.
INSIGHT ABOUNDS!
On Friday, the teacher noticed Ruth was struggling with her math. She took her aside to a quiet table, and sat with her to work out the problems. She offered reminders about getting her work done so that she would not miss out on snack. It sounds pretty supportive and exactly what I would want. :) She gave me the opportunity to explain that Ruth will "whine" as a result of her anxiety. She knew the math, but was afraid to get them wrong. She assumes the worst... sounds familiar? The teacher THANKED me for letting her know.
The teacher also said that she was sorry that Ruth had missed the whole recess. That was not intended. She has already spoken to the teachers on the playground, and we talked about the sensory stuff, and how they might help. She asked about if we should use the balance disk, and I began to explain there was something different to help Ruth. I had not finished explaining about how to use a flex-band (The kind of long exercise band used with stretching) to help, when she piped in "Oh, the type to tie around the bottom of her chair to bounce her legs on?".
This might turn out to be great!
Kitties
Where do you bring a child with sensory seeking behaviors that absolutely loves cats?
To Grama's? Not really. She has them, and they like to be pet, but really not the best place.
To the zoo? No, the kitties there can not be touched?
How about a kitty sanctuary? YES!
Brian joined a Kitty Sanctuary to volunteer. Ruth and I went along for a tour. By the end of 45 minutes, my redheaded ball of energy had pet and touched, picked up, and played with at least 40 different cats. She dozed in the car for the less than 10 minute ride.
We will be returning, she and I. (So, will Brian, but at a different time.)
To Grama's? Not really. She has them, and they like to be pet, but really not the best place.
To the zoo? No, the kitties there can not be touched?
How about a kitty sanctuary? YES!
Brian joined a Kitty Sanctuary to volunteer. Ruth and I went along for a tour. By the end of 45 minutes, my redheaded ball of energy had pet and touched, picked up, and played with at least 40 different cats. She dozed in the car for the less than 10 minute ride.
We will be returning, she and I. (So, will Brian, but at a different time.)
It is not always easy...
To listen to others, especially the Pastor of my church. I have found myself often feeling out of touch with his thoughts. This comes from years of "differing opinions" regarding things on a personal level. Today, thankfully, things were different. His sermon mirrored a conversation I had with my mother. You know, the type of coincidence that makes really feel the Spirit of the Lord speaking to you.
Mom said I need to be more aggressive with Ruth's school. On the third day of the school year, she lost all of her recess and went without snack as she struggled to get caught up in math. Not one of her sensory items are in her classroom. How exactly can she have consequences if they have not provided her with her needed supports?
Mom said that God made Ruth special, and that I was made her mother for a reason...
Rev. Lou said that sometimes we have to take a stand that does not always make us popular. We need to listen for what God wants us to do, and then do it. He said that it can be simple things like helping others when you know they need it, it could be reaching out, it could be as a leader or a follower, but that we need to step up and do what we know is needed.
Mom said I need to be more aggressive with Ruth's school. On the third day of the school year, she lost all of her recess and went without snack as she struggled to get caught up in math. Not one of her sensory items are in her classroom. How exactly can she have consequences if they have not provided her with her needed supports?
Mom said that God made Ruth special, and that I was made her mother for a reason...
Rev. Lou said that sometimes we have to take a stand that does not always make us popular. We need to listen for what God wants us to do, and then do it. He said that it can be simple things like helping others when you know they need it, it could be reaching out, it could be as a leader or a follower, but that we need to step up and do what we know is needed.
Opening the door
Living each day with Sensory Processing Disorder puts our family in a different place than most.
We are constantly changing, and trying to decide who's senses are more important.
Do I get to have a fragrance free day,
See the door, open it, and welcome to the world of Sensory Processing Disorder.
We are constantly changing, and trying to decide who's senses are more important.
Do I get to have a fragrance free day,
or does Ruth get to smell like a "french whore house".
(My dad's saying.)
Does Brian get to have peace and quiet,
Does Brian get to have peace and quiet,
or does Ruth get to squeak and squeal to get out her energy?
Does DJ get to have personal space,
Does DJ get to have personal space,
or does Ruth get to be as close as she needs to feel safe?
Does Darrell get to sleep during the day (3rd shift worker)
Does Darrell get to sleep during the day (3rd shift worker)
or does Ruth get to bounce on the trampoline?
How does this all fit in when she goes to school? It doesn't.
Conformity just isn't part of what she does. We can not punish her for meeting her needs. The school doesn't get that. We try to fit it in, and all end up frustrated. Homeschooling is what many do, I cannot afford to keep her home. We pay for OT, Play therapy, a psychiatrist, and whatever else comes along. But, it just never seems to help.
How does this all fit in when she goes to school? It doesn't.
Conformity just isn't part of what she does. We can not punish her for meeting her needs. The school doesn't get that. We try to fit it in, and all end up frustrated. Homeschooling is what many do, I cannot afford to keep her home. We pay for OT, Play therapy, a psychiatrist, and whatever else comes along. But, it just never seems to help.
See the door, open it, and welcome to the world of Sensory Processing Disorder.
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